Friday, August 27, 2010

Sweet Vindication: NIH/FDA Study Confirms Retroviral Infection (XMRV and MLV-related) in CFS

I took a quick break from my blogging break for this one . . .

Monday was a heady, exhausting day, with the long-awaited NIH/FDA study coming out mid-afternoon.  I cartooned all afternoon in my head, then managed to get this one out on Tuesday:  [click on image to enlarge]





Tuesday, Wednesday, Thursday, blogs of my fellow invalids were notably quiet, with a few putting up a notice of the new article and apologies for being flattened beyond saying more. 



Sunday, August 22, 2010

Even Stick Figures Need Time Off

I'm taking a little blogging vacation to concentrate on other things.  I'll be back on September 20.

Sunday, August 15, 2010

Have You Dealt With Your Shit?

“We country people do a very strange thing . . .”  (Audio is approx. 3 minutes, 15 seconds of highlights from a 20-minute experience in Vermont living.)






(Click image to enlarge.)

Monday, August 9, 2010

Still Waiting

NOTE:  If you don’t know what this is about, follow this link for a rundown.

End of June, word was that scientists at NIH had confirmed the Science study linking XMRV with CFS.  I was eager but cautious.



Then Health and Human Services decided to hold the paper, along with a CDC paper which had come to the opposite conclusion, because the two did not agree.  I was mad.




Soon the CDC paper was released.  And I felt a little crazy.




What could I do but wait for the NIH paper to come out too?  Weeks blew by.




Feigned indifference now relieves me of perpetual expectation.





But that could change any day.



Monday, August 2, 2010

New Page: How I Look

I love to see even a single snapshot of the people I read online.  But then, I would love it even more if I could see a bunch of pictures—people have many guises.  So here are a few of mine on a new page to accompany my "about this blog" page.  Special highlight: included is one of the ugliest pictures ever taken of me; you shan't be disappointed.  Check it out.

Monday, July 26, 2010

A Different Kind of Disability

 Some thoughts on the difference between disabilities caused by systemic impairments and body-part-specific impairments. This audio runs 10:29.



Click here if you want to download the mp3.

Sunday, July 18, 2010

Regrets and Big Bird

I’m not much inclined any more to regret the large movements of my life and the decisions I’ve made to shape them.  This is my life; I love it.  I grieve much, regret little.  But some choices, mostly small ones, do linger and stab.   I lived with my mother’s mother my last semester of high school, or rather she and a gay 25ish gentleman of approximately 6’7” lived with me, after my mom and stepfather moved across the country.  One night I was driving home from a social event through thick fog, with Nana beside me.  Nana said I was going too fast and asked me to slow down.  I said I wasn’t going too fast, and, unless my memory is wrong, I didn’t slow down.  Now I wish I had.  It would have been a small thing to do for her, especially as she may have been right.  I also regret losing touch with the 6’7” gay 25-year old.  Richard, oh Richard, where are you?

In college, before my health tanked, I spent a month studying massage at Kripalu ashram in western Massachusetts.  It was a good month — doing yoga every day, eating great vegetarian food somebody else cooked, sleeping in a large dorm room with perhaps 15 women, learning about the body, massaging and being massaged.  Aside from how drained I felt after standing to give massages, I throve.  The place had its problems, as manifest by the revelation a couple years later that the guru had been sleeping with some of his disciples while preaching abstinence to the unmarried.  But it was also a good place to be quiet and to take care of yourself.  It is the only place I’ve been where it’s socially acceptable, and even encouraged, to be silent in the presence of other people during what might otherwise be social opportunities.  There was a woman in my program who was early middle age, moderately heavy, plain faced, and socially awkward.  She was not very expressive in body or countenance, the kind of person who disappears among confident, garrulous folks; I could easily imagine her appearance socially disadvantaging her.  But something happened for her while we were there.  I didn’t know exactly what, but she said to me and a couple other people that she thought her face had become locked into a joyless expression because she had smiled so little in her life.  She felt people were put off by her face, and she wanted to know if this could change.  If she was happy, as she was starting to feel, would her face soften?  I thought it was possible but I certainly didn’t know.  I only had that one conversation with her, and I didn’t attempt a friendship beyond our program, so I’ll never know what answer she found to her question.  Another small regret.

While I was a graduate student at Northwestern University, a rabbi could be found waiting quietly at a booth in the student center with a sign reading, “Ask the Rabbi.”  I wanted to talk to him, and I never did.  I must have passed him dozens of times, but I was too shy, or didn’t know what to ask, or something.  I could have at least told him I liked seeing him there and asked what kinds of questions he got.  But then I hardly ever saw anybody talking to him.  Maybe once or twice.  And a friend tells me the rabbi doesn’t sit there anymore.

But some regrets can be reversed.  When I was, oh, five or six, I had a floor puzzle of Big Bird.  It was 6 feet long and had pieces larger than my head, some almost as long as my little arm.  I loved my Big Bird puzzle.  I didn’t have a thing for Big Bird specifically—I mean, I liked him just fine—but the extravagance of the puzzle was something marvelous.  One day, my mom decided I was too old for it, and she was tired of it.  Mentioning particularly that it was always all over the floor, she suggested, gently but firmly, that I give it to my first grade teacher.  I did not want to.  I knew I did not want to.  But I did want to please my mom.  And I didn’t want to be ungenerous towards my teacher by withholding the Big Bird puzzle from her, which seemed a serious implication of keeping it for myself.  So I gave it away — and have wished I hadn’t ever since.

For a few years, Larry and I have each been looking sporadically for a replacement on eBay. Unbeknownst to me, my mom, having recently heard the story from me, also started looking.  Some time ago, one came and went for more than I was willing to pay, $80 or something; otherwise, the Big Bird puzzle owners of America seemed to be holding tight to their treasure.  But a few months ago one popped up, and we got it for, if I remember correctly, $3.75 plus shipping.

“Oh, now I’m not going to able to long for it anymore!” I exclaimed as soon as we’d bought it.  Larry cried out in exasperation.  (What a crazy little wife he has.)  But I was indeed thrilled.

When the box had come and Larry had opened it for me, and I finally held those pieces in my hands again, I found to my astonishment that I remembered their exact shapes.  The cutout curves and knobs are perfectly familiar.  It’s like a peephole on my mind.  A few of the shapes feel new and they are uniformly the ones cut to represent a recognizable symbol—a star or arrow.  Clearly those held no interest for me, and even now I feel a touch offended by their representational intrusion on the pleasure of pure form I find in the other pieces.

Once I had it, the puzzle had to be put together, of course; I didn’t search it out just so I could fondle the pieces.  Getting up and down from the floor is not something I do, nor would sitting on the floor be workable for my body.  So I put the first few pieces together by bending over to place them on the floor.  Then I realized this approach was, though pleasurable, not really worth the crash it was going to earn me.   Thereafter I dropped the pieces on the floor in their approximate positions and Larry pressed them into place.  Then we took a picture.



(It’s bigger than it looks.)

Tuesday, July 13, 2010

Haven't managed to scrape together a post yet for this week...

Maybe later today, maybe not.  My recent cartoons have been lame, and I've been feeling a little pissy toward my writing.  I'll get over it.

Tuesday, July 6, 2010

Goofy Risqué

Tuesday, June 29, 2010

Happy XMRV news on its way...












In case you haven't heard, word is that NIH and the FDA have confirmed the original Science article which found an association between chronic fatigue syndrome and the newly identified retrovirus called XMRV. But, alas, the news is not really out until it's out.  And so far it isn't really out.
 
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Cartoons at Heaven in My Foot are licensed under a Creative Commons Attribution-Noncommercial-No Derivative Works 3.0 United States License.