Monday, January 31, 2011

The Umph to Act: Getting Press Coverage for XMRV and ME/CFS

The ME/CFS activist community is working nobly on Many Fronts.  One of the numerous big needs is getting more and better press coverage, both for XMRV and ME/CFS.  I think part of that effort should be seeking the interest of individual journalists.  Larry and I are focusing on Amy Goodman, host of Democracy Now! because we know and love the show and because Amy gives substantial coverage to stories, particularly on social-justice issues.  With conventional news outlets, one often needs to have some THING you’re doing to get the interest of the journalists.  With Democracy Now!, I think our story itself has a real chance of being compelling.

Last Fall, Larry wrote a letter to Democracy Now! about XMRV and ME/CFS, and I followed up with this cartoon plus a page of contact resources.  I plan to keep updating Democracy Now! as things unfold.  Persistence is key.  I hope other people will also write to Democracy Now! and will identify other journalists whose beat fits our story.  Anybody care to join me, either pursuing Democracy Now! or another journalist/outlet?

Click image to enlarge.


  1. An inspired idea. It will be very hard to resist your charming little stand-in asking for some notice. Will you, Amy, pretty please? With sugar on top?

    We really do need journalists who don't report off press releases and are willing to dig for the real story.

    Thanks, Priscilla


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